My CF coordinator is the best in the country. /hat tip to Sue @ TGH!! She compiled my PFT and weight stats since 2006 for the site for all of us to see. I put it into a simple little Excel chart in a jiffy, but will be making it look awesome later and edit this wording accordingly.
Pink = Weight -- Yellow = FEV1 %
See that really low trough around Data Point 8? That’s just 3 weeks before our wedding. Yeah, I was sick, sick, sick! See that slope immediately following? The next point was a week after our wedding and the next point was 3 months later; my highest percentage in the last 3 years. You can see every time I go on IVs pretty clearly with this graph with the down, down, up pattern.
This is the time for that trend to end forever!
- time to get my game on with keeping my weight up (check!)
- time to start walking (check!)
- time to start running (let’s walk first)
- time to start pumping iron (hold my feet to the fire)
Wow, you do have a good coordinator. What tools did they recommend to you? Vest, flutter? I love and hate the flutter. It's added years to my life, but it's a bear to use each day. Like exercise for the lungs.
Yeah, she's awesome – and she's walking on our Great Strides on my team because I asked first! I put my regiment here: https://cffatboy.com/2010/03/what-does-100-c… – I got the inCourage vest in August, but just really started hitting it hardcore. I had the Flutter in high school and couldn't get myself to continue blowing through the feeling; same for the Pickle. I've basically been going sans chest PT for 13 years… obviously not the best choice looking at that yellow line, eh?
WOW – very cool!
Thanks. I'll spend more time on a better one and make it a page. I'm also
going to make my meds into a page. My Who Is Fatboy page gets a lot of
traffic.