The Fox by *J-C
The Fox – a.k.a John the Unknown Cystic out West (@UnknownCystic) had been down lateley. He’s been kicking himself for not handling an ER visit the right way and letting frustration get the best of him. He HATES having cystic fibrosis, but let’s step back and take things in perspective. John, I’m beginning to value as a friend up on the upper tiers of friends whom I’ve never met by now. We are transparent, and you can read a LOT into the soul of the person writing when we have dialogue like this going back and forth.
I am here to uplift and edify you today, if you don’t mind, because I feel like it’s what needs to be done today… at 1:30am EST on vacation, in bed, trying to keep Beautiful asleep. Okay, you know how serious I am now.
I don’t know about your religion, politics, or even your exact profession.
You have my respect.
Away by *autumn-rains
I was down. Downright pissed at my ER experience on my stinking birthday last December that put my in a private room when all I needed was an enema, so I get it. I get where you’re coming from – totally. I get the bad choices ER doctors make and how it sends us over the edge because I think we are probably the same personality types (I’m an ISTJ, just in case you’re wondering). I like order. I am loyal. When others don’t exude those properties toward me, I feel misunderstood and pissed. I get it – you are my brother.
I have good news for you.
I’m not the only one who looks up to you. I’m not even 40 yet. Sure, you have a miserable sleeping situation and dozens of more concerns from hymoptysis to your daughter bringing home something nasty from school, but you’ve made it. The cure is close, and you’ve made it. You have a wonderful wife whom we would be absolutely delighted to meed when we make it out to California next summer.
You have a daughter. I can’t imagine the balls it took to go through with that – mainly because I’ve read about what that takes… but you have a daughter! I am wanting what you want, so cherish it.
I don’t want to stifle your creativity with your fox posts one bit, but I do want you to realize that you’re not writing in frustration to just a few. This will live on. There will be a long trail of hits on your topics and people will piece together your life. You’re still working a real job, and that goes so high in my book, you have no idea. I’m a working bigot that way – I’ll admit it outright. I’ve been working 40-90 hours per week since I was 21 yrs old, and I didn’t let CF stop me except the one time the dust at a job was causing too many sinus infections. You are a champ in my book.
Love it. ๐
Thanks, Stina!
Very nice post Fatboy!! Unknown is a super cool fibro who I also have a TON of respect for ๐
Thanks, Ronnie. You're up there, too, but we're just young whipper snappers
compared to the awesome-sauce that Unknown puts on his McGriddles!
Long life to us all. Let's kick CF's @$$ and put it down where it belongs.
Great post. Keep it up!!!
Thanks, Kevin!
A kind and warm kick in the pants! Something I seem to need these days. I am blessed with a five year old daughter who has cf, but also has Down syndrome. Not one professional or hospital has experience with these two combined, so we wander through the murky waters alone most times. Frustrations are daily, but I try to face them with a smile because Phoebe sure does. Without fail, she is the strongest person I know. Thank you for reaffirming that. Peace.
That is one of the most interesting double-whammies I've ever heard of. There is one my wife found that was pretty sad: he had CF, but no muscle tone so he can't cough. I think he's about 5 or so and they brought him home for Hospice because there is nothing they can do but try to make him comfortable since he can't cough like the rest of us when we need to.
Great post. Keep it up!!!
Thanks, Kevin!
A kind and warm kick in the pants! Something I seem to need these days. I am blessed with a five year old daughter who has cf, but also has Down syndrome. Not one professional or hospital has experience with these two combined, so we wander through the murky waters alone most times. Frustrations are daily, but I try to face them with a smile because Phoebe sure does. Without fail, she is the strongest person I know. Thank you for reaffirming that. Peace.
That is one of the most interesting double-whammies I've ever heard of. There is one my wife found that was pretty sad: he had CF, but no muscle tone so he can't cough. I think he's about 5 or so and they brought him home for Hospice because there is nothing they can do but try to make him comfortable since he can't cough like the rest of us when we need to.