It sure does take a lot of work to pack for a plane trip vs. a road trip. We had to check the regulations because they seem to change every 3-6 months as we get more and more removed from 9/11, yet constantly reminded with scares and dry runs that keep getting more regulations in place.
I got a letter from my CF doctor stating that I have cystic fibrosis and will be traveling with [several medications including these listed, but not limited to] and invited them to contact him directly if they have any concerns about what I’m traveling with. That brought a certain special peace of mind, considering that we have over $30,000 worth of medicine and equipment. Each dose of some of my meds is over $30 and my Vest was over $11,000. They will not be leaving our possession, that’s for sure.
To give normal folks and those with various milder forms of CF, here is what we’ve packed:
- 200 capsules of Zenpep for meals and snacks
- my supplements: calcium, fish oil, and probiotics
- Prilosec
- Dulcolax
- albuterol
- Pulmozyme
- colistin and accompanying needles
- Cayston
- 7% saline
- Xanax
- Vicodin
- Nasonex
- Advair Diskus
- Advair HFA
- Vest machine
- Trio/Altera nebulizers
- diabetes testing pack
This should be a trip to get through security with, but my fellow CFers on Twitter and Facebook have assured me that we are doing things the right way, so I’ll let you know when we get to Columbus, home of the best Da** Band in the Land.
Praying you have safe travels and wishing we could be there too :>)
Mom
Safe so far.