From the Blog

How a CFer Prepares for Sinus Surgery

Fatboy Has a Messed Up HeadMy ENT, Dr. Seper, saw me yesterday to review my CT scan from Tuesday and agreed with me that there were major issues. Largest of these issues was the increased, extreme headaches that have rendered me much less productive and constantly on Vicodin, which is barely touching this pain it’s making now, though it does let me look at my laptop screen and get work done.

She gave me two options for treatment:

  • start IV antibiotics for my sinuses for two weeks, but if I don’t have improvement by Monday, schedule surgery or
  • schedule surgery for Monday because she had a cancellation

“Door number 2, please.”

She started coordinating with Dr. Rolfe at CF clinic before I’d even left the office, so when I got down to the car, her office was calling me to say Rolfe wanted me on IVs immediately, so I was to call clinic now. I called Sue’s cell phone and we got things arranged to start me on Meropenem every 8 hours starting this morning.

Beautiful accessed my port before she left for work, because she does a better job than ANY nurse ANYWHERE (and if you want to try to challenge that, bring it on!) and I think she secretly likes playing nurse for a patient who doesn’t puke.

The delivery arrived via courier from someone wearing enough cologne to kill an ox and cover up the smell of one that he killed with his cologne 10 days ago, who also somehow barged in past me to put his clipboard on the counter instead of letting me sign the paperwork without him entering my domain, but maybe I’ll never see the likes of him again.

The home health nurse just left after administering my first dose under supervision in case I had a reaction to it, being my first time taking it. Now the waiting game begins until Sunday. I’ll be admitted after lunch (a huge lunch!!) and have a landmark CT scan that Dr. Seper will use for surgery and stay there overnight to be close and have surgery Monday morning around 11am.

I’m really looking forward to some relief and knowing that I’ll be starting with a clean slate with a clean nose and sinus-focused antibiotics. I was really upset about starting IVs, but Sue and I will have you all know that this IV is for my sinuses only, as they aren’t even putting me on tobramyacin because my sinuses are resistant to it and my lung’s sputum culture, open airways, and lack of loogies do not necessitate any meds for my lungs. She called it “preventative care,” thus my streak continues and I have my RN to back me up. ๐Ÿ˜‰

I’ll probably make another post Sunday night after Beautiful goes home and I can share any nightmare stories about being back in the hospital for a few hours. I’m sure I’ll be able to rack up quite a list in an afternoon and I’ll have time for a morning update before prepping me for surgery to recount all of the atrocities from overnight.

Comments

  1. Good luck with the surgery!!

  2. While I sat and read this post all I could remember was your fake scream from the Port flush video! And yes you are quite right Beautiful is the best nurse around for Port accessing, although I will soon be hot on her tail. ๐Ÿ™‚ Lauren has used Meropenem before and never had any problems with it. Anyway good luck with surgery on Monday, our thoughts will be with the both of you,and I hope you have a quick 2 weeks of IV’s.

  3. Breckgamel says

    So sorry to hear you’re having surgery! So glad to hear you’re having surgery! May all of your headaches go away!!!

  4. Kristi Bowers says

    Kaleb is on Meropenem too!! He is also on Zosyn (that is a new one for us!)

    • My docs have been alternating Doribax (doripenem) and Zosyn when I go on IVs because I “grew” an allergy to cefepime a few years ago. However, those are my lung antibiotics, so they, with my ENT, wanted to concentrate on my sinuses and leave my lungs alone since they are sooo clear for once in my life – they don’t want to risk resistances for a sinus surgery w/ no pulmonary exacerbation.

      Keep me posted on Kaleb and let me know if I can be of any help from Tampa. (we look alike anyway – I feel obligated /chuckle)

  5. wishing you a successful surgery and that the IV’s clear up any residual crud

  6. Determinedleo says

    Good luck!
    My 5 month streak ended but I’m so proud of yours ๐Ÿ˜‰
    Looking forward to hearing great results!

  7. aunt Sandi says

    Keep your chin up. (This also gives good access to your sinus’) I’m sure there will be an interesting post from the hospital. Prayers and positive energy to you both. Love ya, Aunt Sandi

  8. I’m finally getting caught up on your blog after the 2 weeks on Utila. Glad things are going well so far. I’m looking forward to some entertaining horror stories from the hospital along with reports of a successful operation and a quick, infection-free recovery. Once again, I’m praising God for bringing Kristin into your life. She’s just as good for you as your mom is for me. ๐Ÿ˜‰

  9. MiddleAgedLady says

    Jesse,
    I appreciate your mature, “get ‘er done” attitude about a crummy procedure!! It’s inspiring. I will be thinking good thoughts for your successful surgery and recovery.

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