Sometimes my life feels like the song: Can’t Get No Satisfaction. Friday is yet another landmark day for us in our adventures with my newly troublesome sinuses. It’s beginning to look like my long honeymoon without surgery has come crashing completely down since October. I have a follow-up with my ENT Friday after lunch to decide if we need to be more aggressive with his reconstruction of my head.
The scoop
One of the most annoying things for the last year or more is the constant smell in my nose. It varies between smelling like a wet dog and soggy Corn Chex, depending on the infection of the month. Far, far worse are my headaches, even though they aren’t as persistent as the smell is. Every morning is a new day with a ton of gunk in my eyes, a completely stuffed nose, and that smell.
I take a lot of CF in stride, but this is getting on my last nerves. How many times can I tell clients [Read more…]

One of our closest online CF friends is struggling with a decision about whether or not to opt for a g-tube for her sweet baby boy. He started out life quite chunky but has reduced to the 5th percentile now that he’s around a year old. She’s asked for wisdom with the decision, so I offered my 2 cents, which she has since insisted that I give… so here it is for open discussion.
