From the Blog

New Medication Routine

Keep Walking - by Michref

My medication routine changed this last clinic visit and I’ve been reporting on my findings on Facebook. With the foster care home study being our top priority to report on the blog, this has slipped by for almost two weeks, but it has to be shared. Oh, update on the home study: the health inspector is expected today, tomorrow, or Monday to test our water temps, refrigeration temps, and some other random health-related things about our home. Then we will be fast-tracked to licensing!

Due to some changes we made, I haven’t felt this good since high school. Did you catch that? My tenure at high school ended the last millennium: 1997. Back when I was running track, playing competitive golf and lugging my bag around 9-18 holes 5 to 6 times per week, and playing flag football with guys twice my size.

Changes like this need to be discussed, and you deserve to know what works for me so you can ask your doctors.

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Abortion: A Closer Look

Susan G. Komen for the Cure, Planned Parenthood, Fundraising, and Abortion

Today has got me all riled up about the public outrage that Komen stopped funding for PP, which was in turn fought out on CNN by the PP President as an afront to women who get their basic medial care at PP, such as mammograms. See an attempt to get a mammogram from PP – it doesn’t happen, or at least doesn’t happen readily if they just couldn’t reach one that does mammograms.

The fight gets ugly when the sector that contains humanists, the Left, the pro-choicers, etc… whatever labels fit the sympathy that women have the right to abort – get their say on spending by a cancer foundation to promote the PP agenda, I’m sorry, services. I’ve been watching @komenforthecure on Twitter and they are saying all day long to people smacking them around publicly that PP is not an official partner, so all of this stuff is unfair. Well, if it’s so unfair that one side is against them and when they flip-flop back and it makes the other side mad because that group didn’t know PP was receiving funding from Komen, how is that any more unfair? Komen can’t keep this up very long and save face. They need to come out and say “yes, we give these (I almost used profanity) guys money, we’re sorry that upsets you, so if you want to take your money to Moffitt Cancer Center instead, go right the flip ahead.” I could respect that, but this is idiotic.

While we’re on the topic of PP (and indirectly, abortion), I’ve made a small list of people who were known to either be adopted instead of aborted or whose parents were pressured to abort them. Think about how different the world would be without these people: Art Linkletter, Dave Thomas, William (Bill) “Slick Willy” Clinton, Steve Jobs, Tim Tebow.

_________ represents the name of any CFer (or other genetically tested unborn) whose parents decided that life with a disease was more merciful than not giving them a chance. How many of us would be here today if our parents took their doctor’s advice about what to do with our unborn/born status? I’m honored to be in the same CF circles as someone like Jamey Remaley and her family that now includes Radek and now little Peyton who is still getting used to being in this world. Read her account of finding out her unborn baby boy was going to have the ΔF508/ΔF508 mutation. Good job, Remaleys! Sticking to your guns like that… you’re aces in my book.

Not something that I’d turn into my old English profs, but this is my emotional brain-dump for the afternoon after fighting with my insurance for an hour and trying to get Pulmozyme again.

Project 52: Week 1 – Resolution

One of my fellow WordPress designers has a photo blog and is quite the accomplished photographer and designer. Well, she has a weekly photo linky for 2012 called p52.

project 52 p52 weekly photo challenge my3boybarians.com

This week’s project is “resolution.” Since that was the only theme description and I’ve been in Photoshop all week, here’s my submission on resolution:

p52 Week One - Resolution

What to Be Without CF

militaryI’m an avid educational show aficionado and see a bunch of things I’d like to do but can’t because of CF.

What’s more, is that I know I would be tougher than 99% of the people doing those things if I were cured of CF and restored to supreme physical condition. I have my moments of daydreaming. Anyone want to guess my top 5 “I don’t have CF anymore jobs?” Don’t look down if you’re guessing. I’ll even delay a few lines if you like to cheat.

When I was in high school – a junior to be exact – my physics class was overrun by a major in the navy who said that there was a shortage of nuclear specialists on their submarines. He went into the glamour and glory of living underwater without seeing sunlight for months on end because you get to eat like kings and don’t have to run 12-mile hikes at 3am. Sounded good to me.

I passed the exam with flying colors. One of 4 in my class of 30+. He asked to speak to us after an assembly with other recruiters later in the day. I was all gung-ho about joining and listened intently to their presentations and was ready to sign on the dotted line. It finally occurred to me that it might be difficult to do my treatments every day on a military schedule, so I told him I had CF. “As in cystic fibrosis?” I replied in the affirmative and he commended me on my score and my sense of duty to serve, but the Navy doesn’t have room for people who need so much medical intervention – they can’t just surface while on a covert mission because I have an emergency. I was sad for weeks, but I understood. There went my other dreams of… wait, not yet. I haven’t told you the others.
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