From the Blog

Great Things Coming

I just had to let you all know everything is fine, other than nausea from my Levaquin. I’ve got it under as much control as possible, but it still disables me for a couple of hours every day. Thankfully, I’m done with it Thursday night, so I should have a productive Friday.

I can breathe better than in years (lungs and sinuses now) and am ready to conquer the world like never before. I’ve even begun shopping for new shoes on Zappos.com, pending Beautiful’s go-ahead to “invest” in our exercise if I’m going to have any chance of running a 5k in February. Business is booming and Beautiful has her food allergies figured out, so we begin eating a bit more normally today after I pick up some medicine for her that lets her eat foods without a reaction. We are very blessed to be getting back on our feet in every way possible.

On the site front, I have an exciting product review coming up and a whole string of articles coming down the pike, but I need to take care of business first – not for the immediate money, but to satisfy everyone who has paid their deposit. A nice place to be, because that means more income when each is done, so expect my best work ever after that because I’ll have time for once.

On a more secretive note, things are in the works to have a video or two of me interviewed about the benefits of one of the newer treatments I’m on. One would involve flying me or us (that’s how early this is) to the studio and the other would send the film crew here to me and I’d be taking a half-day to devote to filming. Words can’t describe how exciting that is. The same firm that is involved with this great opportunity has become close enough that I’m going to start calling him a friend after we talk on the phone for the first time, especially since he called me “an inspiration.” I’m humbled and ecstatic like never before – other than our wedding 3.989 years ago.

Breathing Easy

I’m breathing easier than I can remember with my brain. We are talking about going back to high school for this kind of ease. Two days post surgery and my breathing through my swollen sinuses (one with a sponge in it) is better than right after a sinus sucking before the surgery. As soon as I’m done with IVs, the world had better watch out. Jesse’s back!

With the weather cooling off like it is, some new running shoes may be in order.

Running Behind

Sorry for the lack of activity since Sunday. I’ve been on and off feverish and working feverishly to complete old projects and bring in new projects so far this week, and everyone who knows me knows that taking care of my household will always take priority over writing.

I have a very long motivational/diatribe piece to write as soon as I can that will make up for this absence.

You know what they say about absence and the heart…

‘Improving Access to Clinical Trials Act’ Passes U.S. Senate in Victory for CF Advocates

BETHESDA, Md.,ย Aug. 6ย /PRNewswire-USNewswire/ — The U.S. Senate last night passed theย Improving Access to Clinical Trials Act” (I-ACT), a bipartisan piece of legislation championed by the Cystic Fibrosis Foundation, its advocates and 120 other health advocacy organizations.

The legislation enables patients with rare diseases to participate in clinical trials without losing eligibility for public healthcare benefits.

Read the full story…

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