Changing the standard of thinking.

Why You Need Reserves to Fight Cystic Fibrosis

Fight CFHaving reserves to fight cystic fibrosis is one of the single most important things you can do for your health, both your body and mind. Without reserves, infections take root much quicker and much deeper and expend your valuable weapons that come in the form of antibiotics.

I don’t know of a single CFer who hasn’t experienced getting completely run down and getting sick. We push ourselves to be “normal” and our bodies can’t keep up a normal life with the bugs that attack us 24/7/365.

I used to be “normal.” I had a desk job working 40-50 hours per week (over 80% of full-time males work more than their scheduled 40-hour work weeks) and went to college 2 nights per week until 9:30pm. While doing that, I was on IVs every 6 months. Every semester.

It wasn’t until I figured out what my body could handle did I stop taking my reserves so low that I needed medical intervention. I can handle a lot, but not for very long. I can take on emotional stress for a few weeks. I can deal with sleep-deprivation for exactly 3 days. I can bounce back from hard labor if I take a day or two off afterward. For me, that even includes traveling. I need to take the next day easy.

This doesn’t mean you’re a wimp. I used to think that it did mean exactly that. [Read more…]

New Medication Routine

Keep Walking - by Michref

My medication routine changed this last clinic visit and I’ve been reporting on my findings on Facebook. With the foster care home study being our top priority to report on the blog, this has slipped by for almost two weeks, but it has to be shared. Oh, update on the home study: the health inspector is expected today, tomorrow, or Monday to test our water temps, refrigeration temps, and some other random health-related things about our home. Then we will be fast-tracked to licensing!

Due to some changes we made, I haven’t felt this good since high school. Did you catch that? My tenure at high school ended the last millennium: 1997. Back when I was running track, playing competitive golf and lugging my bag around 9-18 holes 5 to 6 times per week, and playing flag football with guys twice my size.

Changes like this need to be discussed, and you deserve to know what works for me so you can ask your doctors.

[Read more…]

Home Study Completed – Moving Fast Now

Hillsborough KidsWell, we sure breathed a big sigh of relief today around 1:30 when our home study was done. We were told how long to expect the rest of the process to take from this point on! What? I’m not going to say just yet – you have to know what happened, don’t you?

Delightful news first: she said we were the most organized applicants in months. Would you expect nothing less from Beautiful? What we didn’t have filled out yet, we reviewed and signed on the spot. The documents and paperwork she didn’t have yet, such as our marriage license and our last 2 years of tax returns (I gave her this year’s PayPal 1099-K for good measure), we came upstairs to the office and ran off copies of everything she needed.

We took a field trip up the the bedrooms. I was shocked to hear someone who does home studies for the entire county – all applicants – give a big “awwwww” when she saw the nursery. Good job, again, Beautiful. We had to take the bumper out of the crib and take a photo, which I immediately e-mailed to her from my phone. Then we went to the “big boy room” since it’s a double bed and blue bedding for now. She liked it very much, also. Again, another photo and e-mail.

Back downstairs, we ran through more paperwork and got some questions asked about licensing for one at at time vs a sibling group. [Read more…]

Home Study: the Big Test for Foster Care

Home StudyAs most of you know who’ve been reading a while, our foster care process started a year ago. We had our ups and downs financially, but now our ups are so much better than our downs are bad, we are ready to keep moving forward. We have had our backgrounds checked, fingerprints taken, medical exams done, and our moral character notarized. Today, at 11am EST, we have our home study!

What is a home study?

Well, we’re not exactly sure. We haven’t done this before, but we have been told quite a bit from several sources, so here’s what we think will go down:

  • we’ll finish up some paperwork
  • we’ll find out we haven’t received some paperwork that we still need to do
  • we’ll have 95% of our house approved with some changes remaining
  • we’ll get licensed for both spare bedrooms and a broader age range, but that will lead to the house only being 90% approved
  • there will be some sense of relief and disappointment that we’re not done yet

Leftover tidbits

I started writing a post a couple of weeks ago, and this is all that should be published from that brain dump because I wasn’t thinking positively for a good week or so. I hope it clears up some questions about foster care that people ask us. We don’t mind questions, but these should fix some misconceptions about fostering:

  • No, we aren’t fostering to adopt. That does not exist, or at least not in Florida. The goal is always reunification with family members unless they are already seeking to terminate parental rights (TPR), in which case, temporary care is needed for 6-12 months until that is final and an adoption can proceed. Foster parents do get “first dibs,” but obviously not every placement is going to be a good match due to thousands of possible factors.
  • No, we don’t get to pick out who to foster. We don’t know what age or gender or race. We can safely assume we need to be ready for anything within the parameters we are comfortable with. Here’s what happens, and it’s just like the show COPS: someone is bad, an idiot, or having a rough spell and the cops, CPS, or other agency steps in and removes a child or sibling group from a situation. They have 24 hours to get them into a group home or foster home. They call everyone on their list for fostering and we can ask some questions and accept or turn down a placement due to age, medical issues, the situation behind the removal, or because we are at our licensed limit for placement at the moment. We are then to care for them until they are reunited or placed with an adoptive family. Beautiful also wrote about this yesterday.

We’ve met several CFers who have done in vitro, have a CFer practically across the street who did international adoption, but so far we haven’t met any of the half-dozen or so CFers I know through Facebook who are fostering or have fostered. This is a new world of parenting for us and for everyone who is close to us, so 2012 is going to be an interesting year for a lot of us.

Why You Need Reserves to Fight Cystic Fibrosis

Having reserves to fight cystic fibrosis is one of the single most important things you can do for your health, both your body and mind. Without reserves, infections take root much quicker and much deeper and expend your valuable weapons that come in … [Read more]

New Medication Routine

My medication routine changed this last clinic visit and I've been reporting on my findings on Facebook. With the foster care home study being our top priority to report on the blog, this has slipped by for almost two weeks, but it has to be shared. … [Read more]

Home Study Completed – Moving Fast Now

Well, we sure breathed a big sigh of relief today around 1:30 when our home study was done. We were told how long to expect the rest of the process to take from this point on! What? I'm not going to say just yet - you have to know what happened, … [Read more]

Home Study: the Big Test for Foster Care

As most of you know who've been reading a while, our foster care process started a year ago. We had our ups and downs financially, but now our ups are so much better than our downs are bad, we are ready to keep moving forward. We have had our … [Read more]

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