Changing the standard of thinking.

We Don’t Understand Deep Dislike of Doctor Visits

This entry is part [part not set] of 19 in the series What CFers Do

Being healthy to avoid the doctorCFers (as a whole) have to overcome a lot of the rest of the world’s fear or dislike of visits to the doctor while every kid would rather be playing outside than going to the doctor. We go every quarter, or even more often, so we have to be used to it and just see it as a part of life. Those who have CF centers who put them on IVs at the first sign of PFT drops have to get used to the hospital. It’s called “life” for us. Heck, I get excited to see the doctor when it is not a CF-related issue.

Then there is the rest of the world. We’ve got the stereotypical man who won’t see a doctor until the bump on his neck is the size of a softball, he is in advanced stages of prostate cancer, or any other number of ailments that can be fixed easily if attended to early on. My dad is somewhat like that, but I think life with me has rubbed off on him a bit so he doesn’t take it to the stereotypical extreme.

Then there is Beautiful. I thought it best for everyone’s sake to get her approval for this, since this is almost as much about her as it is about me now (all clear – good!). She loathes going to any doctor. They make you take your clothes off. They look at every freckle like it’s cancer. They put instruments in uncomfortable places. UGH! Did I capture your disdain accurately, Honey? She says, “almost… continue.”

[Read more…]

Atrovent Made My Best ENT Visit Ever

Atrovent - ipratropium bromideMy now bi-monthly ENT visit Friday was a pretty cool one due to Atrovent nasal spray. I just didn’t know it until now. Just a tiny back story for the new readers: I had my 9th sinus surgery in October 2010 and didn’t feel any relief, CT scan showed my sinuses worse off than September by mid-December, so I switched ENTs and had surgery #10 in January 2011. I’ve continually gotten better all year, most especially after May because I was still having massive sinus headaches up until then but have since decided it’s “just” migraines.

For about 3 months now, I’ve had a severe runny nose. But wait, it’s not just any runny nose. It’s just on my left side. It’s always clear as water and the consistency of hand sanitizer. That’s it! It’s like a hand sanitizer factory. Want some? I’m far from exaggerating to say that I went through more than a box of Kleenex per week – every week. I’d blow my nose in the bathroom in the morning, come downstairs to get my neb stuff, and immediately blow again when I sat down on the couch to start. Then I’d head upstairs and blow again. Every time I moved my head or coughed, I had a mess to consider stopping.

I mentioned it (obviously too passingly) in November because he wasn’t concerned because everything looked good. This time I marked on my sheet that it had to be resolved in a “we need to talk’ manner. [Read more…]

Fostering and the Lonely Road of Pre-placement

Today is a bit of a raw post about the fostering process. Raw emotions and some brain dump to cope and move on with my day rather than mulling over these feelings for hours. Forgive me if this sounds rude or ungrateful for the good things that have happened. They’ve happened, but this feeling persists.

Lonely RoadThis is the oddest I’ve felt for as long as I can remember. Planning to have kids is supposed to feel exciting (and it does), not lonely and misunderstood (but it does). I can’t exactly put a finger on it, but there is a great divide between how people act/react to announcing that you’re expecting and announcing that you’re adopting or fostering.

People have asked [Read more…]

Nearing the Finish Line – Red Tape Ahead

GoodiesIn case you missed it last year, back on July 1st, we announced that we were in the process of getting licensed for foster care. We’d finished the 13-week class and started this and that getting the house ready. We got pretty discouraged that the timing wasn’t right, so the paperwork went undone for months due to knowing it wasn’t the right time.

Being self-employed, income is a very volatile thing based on how much work is lined up and how much I get done so we get paid. We had an excellent June, October, and December to really get a feel for the pattern for months in a row to gain the confidence that it was time again. It just wouldn’t be right to bring someone in to live with us when we are all stressed out about finances, so we put our house in order first.

The trouble: we still didn’t have much in the way of things to care for kids. We had no crib, bedding, books, safety devices, and the spare rooms weren’t anywhere near being ready. Just days after we announced, we painted our master bedroom, re-arranged the furniture, and put in matching desks and a filing cabinet on one wall as our new office – 5 feet from my side of the bed. Talk about a rough commute!

We tried for a couple of months to get a crib at sales and consignment shops, but recent legislation outlawed drop-side cribs. Anyone who had a “legal” crib isn’t ready to get rid of it and anyone getting rid of their crib had one we aren’t allowed to use. Realizing we had to buy a new crib made us save up for it – after Christmas.

The crib arrived on MLK Day and I put it up immediately. That night, we went to Target to get things we knew we couldn’t get at consignment stores or Goodwill. The next morning we went to a consignment shop for baby stuff nearby and went to Goodwill after that. We got an awesome high chair, baby tub, a baby carrier (I picked that one out), and 18 cardboard baby books all at fantastic steals. We also hit Staples for a locking cash box for my refrigerated meds (yeah, try locking up all of a CFers meds, right?) and rearranged the fridge. I still open the crisper drawer half the time to get my meds out only to find shredded cheese.

We got our paperwork filled out as best we can and took our “affidavits of good moral character” to a friend at church yesterday to be notarized and had some babysitter forms filled out later in the day. I think we’re ready to turn in the paperwork after Beautiful’s doctor sends back her medical form saying she is medically capable of raising a kid.

The next step will be to be fingerprinted and have our Family Development Specialist (FDS) come over to review the paperwork and do the “home study” that gets us licensed to foster. From what we understand of the process, the babysitter background checks take 30 days (I don’t believe them that it’s that long) and I would imagine that anything that isn’t ready according to the home study can be fixed in a day or so. I think we’ll be ready by March! Enough words… on to the photos I took last night and you can read Beautiful’s post.

This chair will get a lot of use once again. It was the chair Beautiful’s parents bought when her younger brother was born… 21 years ago!

Rocking chair

We got all of the pink, blue, and brown bedding, changing table, and room accessories from a friend of a friend who was getting rid of all their baby stuff. We like that it has both blue and pink since we’re almost certain to have both come through the system.

Crib Details

Crib from CornerChanging Table

We had to get a wall decal because we’re not allowed to hang anything from the wall above the crib or use a mobile, either. Something has to go on the wall!

Wall Decal - Happy Tree

We filled a basket upstairs and downstairs with the books we got, along with some appropriately-placed accessories (note that I found the one pacifier pack that was on clearance AND it’s purple for CF awareness!).

Basket of Goodies

We Don’t Understand Deep Dislike of Doctor Visits

CFers (as a whole) have to overcome a lot of the rest of the world's fear or dislike of visits to the doctor while every kid would rather be playing outside than going to the doctor. We go every quarter, or even more often, so we have to be used to … [Read more]

Atrovent Made My Best ENT Visit Ever

My now bi-monthly ENT visit Friday was a pretty cool one due to Atrovent nasal spray. I just didn't know it until now. Just a tiny back story for the new readers: I had my 9th sinus surgery in October 2010 and didn't feel any relief, CT scan showed … [Read more]

Fostering and the Lonely Road of Pre-placement

Today is a bit of a raw post about the fostering process. Raw emotions and some brain dump to cope and move on with my day rather than mulling over these feelings for hours. Forgive me if this sounds rude or ungrateful for the good things that have … [Read more]

Nearing the Finish Line – Red Tape Ahead

In case you missed it last year, back on July 1st, we announced that we were in the process of getting licensed for foster care. We'd finished the 13-week class and started this and that getting the house ready. We got pretty discouraged that the … [Read more]

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