Changing the standard of thinking.
One of my fellow WordPress designers has a photo blog and is quite the accomplished photographer and designer. Well, she has a weekly photo linky for 2012 called p52.
This week’s project is “resolution.” Since that was the only theme description and I’ve been in Photoshop all week, here’s my submission on resolution:
I’m an avid educational show aficionado and see a bunch of things I’d like to do but can’t because of CF.
What’s more, is that I know I would be tougher than 99% of the people doing those things if I were cured of CF and restored to supreme physical condition. I have my moments of daydreaming. Anyone want to guess my top 5 “I don’t have CF anymore jobs?” Don’t look down if you’re guessing. I’ll even delay a few lines if you like to cheat.
When I was in high school – a junior to be exact – my physics class was overrun by a major in the navy who said that there was a shortage of nuclear specialists on their submarines. He went into the glamour and glory of living underwater without seeing sunlight for months on end because you get to eat like kings and don’t have to run 12-mile hikes at 3am. Sounded good to me.
I passed the exam with flying colors. One of 4 in my class of 30+. He asked to speak to us after an assembly with other recruiters later in the day. I was all gung-ho about joining and listened intently to their presentations and was ready to sign on the dotted line. It finally occurred to me that it might be difficult to do my treatments every day on a military schedule, so I told him I had CF. “As in cystic fibrosis?” I replied in the affirmative and he commended me on my score and my sense of duty to serve, but the Navy doesn’t have room for people who need so much medical intervention – they can’t just surface while on a covert mission because I have an emergency. I was sad for weeks, but I understood. There went my other dreams of… wait, not yet. I haven’t told you the others.
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One of my friends from years of social media is Paul Pichugin from Australia. To say he’s a world-class photographer isn’t giving him his dues, as you’ll see by this video. He said on Facebook that this has been 2 years in the making and over 10,000 photos! Hit the HD and full-screen icons to see it in its maximum awe-inspiring format.
©2008-2011 ~tissuepaperbeggar
Yesterday was another typical day in Emergency Room Hell that is called TGH. I may or may not write about it later, though I’ll likely do an educational piece about my 10th or so visit as an adult CFer with a bowel obstruction. As some of us are familiar with our surgeries at birth that involve a high blockage, throwing up is often a part of the event. One time I was in a rush and forgot to take my meds while eating a 12″ baked sub with melted cheese on it. It wasn’t the last time I saw that sub.
Well, I managed to have an all-new experience yesterday at the ripe old age of 32.94 years. After my last 3 blockages, I’ve been quite tender after my treatment for several days. It’s actually alarming the next day how sore and distended I am, but I know my body well enough to know I’m clear and it’s all a part of getting older with cystic fibrosis. Last night was no different. I was still very tender as I left the ER, but I proceeded to the car as Beautiful pulled up to the ER drop-off and pick-up after going to the garage for me.
We had barely left the hospital as I felt a couple of waves of nausea. I’d been feeling the worst heartburn of my life all day and assumed it was because I’d missed 2 doses of my Prilosec. When I’d cough, the burning got worse and I almost lost it a couple of times laying in my tiny bed. It got worse and worse all day until it hit its max at Kennedy and Ashley. Down went the window, probably for dual purpose. If the light hadn’t been red at the time, I wouldn’t have had time to recover and it would have been “game over.”
A little info about Beautiful… she hasn’t puked since she was a wee one. When she gets sick, she sits as still as possible until she feels okay enough to move. When I start to feel sick, she has done everything from run away to get a bucket and run away to run upstairs and call her mom to put her on alert that she might need to come over. I have only lost it once since we’ve been married and never in our house. It’s an old apartment memory about 4 years ago. I’m doing pretty good, eh?
So, back to the drive. I was constantly falling asleep all the way home because I still had an hour-old dose of morphine in my system. She stopped in the driveway to let me out rather than clamber around the front of the car beside the chest freezer while I was so disoriented.
How sweet.
How fortunate.
I stopped by the freezer for a second to regain myself after another wave of nausea hit. I took another step in front of the door and paused again. Beautiful saw that and waited until I was inside before pulling in.
Inside and with the door closed, I stood there for a solid 5 seconds before it hit again. HARD! This was it. You know, that time you have to decide immediately what to do.
Front door? No, mess on the sidewalk after dark is no fun.
Upstairs bathroom? I won’t make it.
Downstairs bathroom? I won’t make it now – I wasted too many milliseconds and the target is too small.
Kitchen sink? There are clean dishes on the left side, but I think I can ma
I took one step toward the sink and felt it start. I got a second step and saw a pink/orange fountain erupt in front of my face, gently arcing upward. I made it to the sink at the same time as the projectile. With the exception of the washcloth hanging from the faucet, the one little bit on the breakfast bar edging, and the small splatter on the baking sheet on the left side of the sink, it ALL made it in the empty side of the sink!
There, I discovered the source of my heartburn: the pulp of the orange slices I’d had at small group the night before, a small shred of cheddar cheese, and a bit of ground beef from the chili right before the oranges. Apparently I was already in deep trouble before dinner, meaning dinner was a really bad idea.
Then the horror hit me. Beautiful was going to come inside to this mess. Quick! Clean it up! Nope, I wasn’t done. She took at least 30 seconds to come in and I was still standing there over my filth, completely aware of how acidic it smelled. She walked in, asked if I was okay, and said, “I’m going upstairs to take a shower. When I’m done, I’ll have fresh clothes for you to put on after your shower.” 😉
I got out of the shower and all of the dishes and the counter top had been cleaned and Windex’d. She told me this morning that she’d sprayed the whole downstairs and stairwell with Lysol and was afraid the smell was going to make me cough. It didn’t.
All in all, I got 98% of my puke in a 12″x12″ sink from at least 8′ away. That has to be some sort of world record. It’s at least a personal record.
One of my fellow WordPress designers has a photo blog and is quite the accomplished photographer and designer. Well, she has a weekly photo linky for 2012 called p52. This week's project is "resolution." Since that was the only theme … [Read more]
I'm an avid educational show aficionado and see a bunch of things I'd like to do but can't because of CF. What's more, is that I know I would be tougher than 99% of the people doing those things if I were cured of CF and restored to supreme … [Read more]
One of my friends from years of social media is Paul Pichugin from Australia. To say he's a world-class photographer isn't giving him his dues, as you'll see by this video. He said on Facebook that this has been 2 years in the making and over 10,000 … [Read more]
DO NOT read any further unless you want to read about the funniest, most amazing account of the above subject you've ever read or are likely to read in the future. Okay, maybe I'm just the only person crazy and confident enough to write about … [Read more]
CF Fatboy resides in FL. He and Beautiful have been married for 10 years, have two adopted sons, and are loving their choice to change the course of the boys' lives from their previous trajectory.