Changing the standard of thinking.

Let Me Take Care of You

Take Care of YouI’m back to struggling doing too much, or so Beautiful says. One thing that I’ve learned in the last 9 years is that woman is very rarely wrong when it comes to how much work I’m doing. She has questioned if I’m working before (/grin) but I don’t think she’s every been mistaken about me working too much for my own good.

I’ve mentioned (or at least I started writing the post one day) that I’ve wanted to be the sole breadwinner for the family since before we were a family. I always saw her having a job as a means to an end to get us more stable and get the things we needed to settle down to start a family, however that was going to happen. Being self-employed has given me the opportunity to have more freedom in my schedule to work when I at at my best and to take breaks when I need to, even though I know that means more work later. We have definitely taken more time off this month to do what needs to be done, but I am also working much harder when I am working to try to “get ahead.” Now that I am the sole breadwinner, doubt creeps into our conversations recently about the wisdom of relying on my ability to work without getting sick.

Today was one of those days.

“Are you sure you don’t want me to get a job?”

“Absolutely! I’d rather have you here, happy, taking care of the place the way we like to have it, and not complaining about work and always being exhausted.”

“But I’d rather have you healthy than working until you’re sick and we don’t have any money because you are our money. I won’t complain about my job.”

[Read more…]

Upcoming Topics and Open Call for Guest Posts

Looking for...I’ve got quite a few topics brewing in my head, but not enough time to do them all. I’ve been needing to update everyone on my sleeping with my Auto-PAP machine, my new PARI Sinus, and my Electro Flo 5000. I don’t want to do them halfway and leave too much to say that just comes back to me in the comments rather than the content, so I need to take my time on them more than it takes to pontificate.

Also, due to my crazy amount of project work to complete (I’m writing this at 2am with another hour or so of work to do tonight), I have room to accept guest posts in the following categories:

  • relationships
  • goals
  • motivational
  • transplants
  • what CFers do

To submit a guest post for consideration (we all have standards, or at least we should), simply put it in my contact form and I’ll backlink to your site if you have one.

Why I Am Not a CF Sufferer

SufferingI hate the terms/phrases “CF sufferer” or “I/they suffer from CF.” If there’s something you want to do that is sure to send me over the edge, refer to me as a “sufferer.” Do I lead an easy life? Heck no; I struggle for breath and limit some of my activities based on what I can do on a given day. Still, I wouldn’t expect the local paper to do a story on me opting out of the 5K race due to my infection with the headline: Local CF Sufferer Misses Out Again. That would be ludicrous.

Of course we suffer from time to time. More often than not in some peoples’ cases, but that’s not a reason to label your life as one of suffering.

“Suffering is a state of mind, not a state of body.” – Jesse Petersen

When I see someone with spina bifida or cerebral palsy who is bound to their wheelchair and often in pain, yet they live their life with a smile on their face and bringing delight to those around them, who are we to say that they are suffering unless they tell us, “Hey, Iย  am suffering down here. Don’t you dare have fun around me!”

I don’t associate with those who are suffering. They aren’t any fun and don’t add value to my life. It’s like some people are hypertonic by adding their life to everyone else and others are hypotonic, taking the life out of everyone around them. Disease or disability or not, people don’t want to be with hypotonic people because they will suck the joy out of anything and anyone. You know those people. Those people are the sufferers.

So, the next time you hear that phrase or are about to use that phrase, just think to yourself “does this person really act like they are suffering?”

CF Fatboy Turns 1 Year Old

BirthdayI knew I started CF Fatboy as a Posterous site about a year ago, so I dug through my first posts to find the first one that I wrote residing here, in WordPress, using my full skill set to really make it a place to come and become a community. In a post titled, Goals for Week 2, I set forth to start compiling helpful and insightful mini-articles to both document life with CF and explain it for those who want to learn more.

In the last year the site has grown from nothing to 228 articles, 1301 comments, hundreds of thousands of words, and way more thousands of visitors than I ever imagined. I had no idea this many people would be reading about my/our daily life with this wretched disease that I still refuse to say that I suffer from… and by now, many of you know why I refuse to use that term. I don’t think much has changed in the way of my writing, but perhaps I’ve found more of a balanced CFer and life as a husband and business owner “voice.” These very things are what shape my day-to-day life more than in the past, when I was merely getting by in life and wondering when the axe was going to fall or the ice was going to crack all the way through. Inasmuch as it depends on me, I own my life now and what I can’t do on my own, I rely on Beautiful and from help above… and even a little more from others when I humble myself enough to accept it.

[Read more…]

Let Me Take Care of You

I'm back to struggling doing too much, or so Beautiful says. One thing that I've learned in the last 9 years is that woman is very rarely wrong when it comes to how much work I'm doing. She has questioned if I'm working before (/grin) but I don't … [Read more]

Upcoming Topics and Open Call for Guest Posts

I've got quite a few topics brewing in my head, but not enough time to do them all. I've been needing to update everyone on my sleeping with my Auto-PAP machine, my new PARI Sinus, and my Electro Flo 5000. I don't want to do them halfway and leave … [Read more]

Why I Am Not a CF Sufferer

I hate the terms/phrases "CF sufferer" or "I/they suffer from CF." If there's something you want to do that is sure to send me over the edge, refer to me as a "sufferer." Do I lead an easy life? Heck no; I struggle for breath and limit some of my … [Read more]

CF Fatboy Turns 1 Year Old

I knew I started CF Fatboy as a Posterous site about a year ago, so I dug through my first posts to find the first one that I wrote residing here, in WordPress, using my full skill set to really make it a place to come and become a community. In a … [Read more]

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