Changing the standard of thinking.

Fatboy’s New Life and the Journey Getting There

TogetherSorry about dropping off the map here recently. I’ve been on Twitter and Facebook, but not here just for the sheer amount of time it takes to write content that I’m happy presenting to the world. Tonight, I’m making that time, even though I have a to-do list in front of me that is absent an entry about blogging. Oh well!

Friday was a life-changing day for the Petersen house. Beautiful’s last day at her office job came to a close at 4pm EST! After months of working conditions growing worse and it affecting her physically and emotionally, we threw in the towel trying to live a double life – a life where we get up 2 hours earlier than we should and spend too much energy repairing the damage done during the week in many areas of our lives. Monday will be her first day fully participating as a co-founder of Petersen Media Group and we are totally stoked!

It has always been my goal as a husband to be able to provide for her to be able to stay home if she chose. [Read more…]

The Road Less Traveled

Dark sideOr rather, “never before traveled.”

The road I’m referring to is the one we’re on, as active, positive members of the CF community. I am/we are standing on the shoulders of giants who figured this stuff out a while ago: that you can not only live well with CF but actually improve your health as you get older to reverse the stupidity or bad/unknown medicine of the past. I’m not the first, nor the last to realize this and mobilize people into changing the standard of thinking about cystic fibrosis, but we as a group are the first to do so because there once was no hope. We are a collection of just a couple of generations of people who have a chance to have a different relationship with CF than any before us.

Hope for the hopeless

There was a day when your child simply died after a few days or months. If they were older, they were undernourished. If they were a newborn and an autopsy was performed, they were full of crap. The next advancement was being somewhat nourished for a time, but succumbing to pulmonary failure by 7 or so. Today, given the right genes, medicine, and attitude, we have CFers in their 50s that still haven’t needed a transplant.

While not true for everyone, there is a growing trend of seeing people into their 30s, 40s, and beyond before their lungs cry out that they have given out. [Read more…]

Glutathione, Because Everyone Needs a Little Support

Guest post by Bryan Hyde โ€“ another patient at Tampa General Hospital. We met out on the steps of the valet area one day waiting for our cars to be brought to us like kings.

Got girdle?In my previous post I talked about inflammation and its deleterious effect on the lungs of people with CF. I wrote about taking NAC (n-acetyl cysteine) as precursor that the body easily converts into glutathione and its derivatives. Glutathione is an extremely important antioxidant defender of the lungs. The goal of supplementation is to assist the body in what would otherwise be a normal process for a normal individual. Well, we all know that we are a little abnormal, CF or otherwise. CF lungs are deficient in glutathione in part due to the overwhelming response of our bodies to the constant attack by pathogens. In order to stabilize and reverse the tremendous negative feedback loop caused by these attacks, I believe it necessary to go on the offensive. I have found two supplements that work to enhance the bodyโ€™s ability to produce glutathione as well as its function.

[Read more…]

Figuring Stuff Out

ThinkingI’ve had a lot on my mind since Sunday thinking about how CF has affected my life. It’s undeniable that it has touched every area possible: personality, geographic location, health, faith, status, and career. All in all, it’s been a very good week of mulling over these thoughts for such a profound amount of time compared to fleeting thoughts that bombard me every hour. Here’s what I’ve come up with this week.

Personality

I’m not quite clear what sort of person I’d be if I wasn’t kept in check with my own “thorn in the flesh” that places limits and constant reminders of them into my daily routine. I have a suspicion that I’d be a pompous, overly confident piece of work. Even as it is now, I swing wildly from being a cocky, self-centered jerk all the way to being a depressing, insecure weirdo. [Read more…]

Fatboy’s New Life and the Journey Getting There

Sorry about dropping off the map here recently. I've been on Twitter and Facebook, but not here just for the sheer amount of time it takes to write content that I'm happy presenting to the world. Tonight, I'm making that time, even though I have a … [Read more]

The Road Less Traveled

Or rather, "never before traveled." The road I'm referring to is the one we're on, as active, positive members of the CF community. I am/we are standing on the shoulders of giants who figured this stuff out a while ago: that you can not only live … [Read more]

Glutathione, Because Everyone Needs a Little Support

Guest post by Bryan Hyde โ€“ another patient at Tampa General Hospital. We met out on the steps of the valet area one day waiting for our cars to be brought to us like kings. In my previous post I talked about inflammation and its deleterious effect … [Read more]

Figuring Stuff Out

I've had a lot on my mind since Sunday thinking about how CF has affected my life. It's undeniable that it has touched every area possible: personality, geographic location, health, faith, status, and career. All in all, it's been a very good week of … [Read more]

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