Fatboy vs the TSA – Traveling with Medical Stuff
September 4, 2010
This was the EASY part of packing
We were stressing over traveling up to Ohio this weekend with all of my medicine and medical supplies that included my $11,000 Vest and 4 days of Cayston and Pulmozyme, along with all of my other “less expensive” meds. Of course, we were also n more possible conflict with the needles needed to mix and draw out my colistin from its vials, so I was expecting a nightmare experience.
The morning before, I read up on everything on the Southwest site and the TSA site about traveling with medical disabilities and medical supplies. It seemed like it was all in our favor to be a breeze, so long as we declared early on that we were going to be a pain in the butt. I declared so early, the guy seemed annoyed that I mentioned that I had special medical equipment with me and the second guy said to just get in the line with everyone else.
Leaving on a Jet Plane…
September 3, 2010
It sure does take a lot of work to pack for a plane trip vs. a road trip. We had to check the regulations because they seem to change every 3-6 months as we get more and more removed from 9/11, yet constantly reminded with scares and dry runs that keep getting more regulations in place.
I got a letter from my CF doctor stating that I have cystic fibrosis and will be traveling with [several medications including these listed, but not limited to] and invited them to contact him directly if they have any concerns about what I’m traveling with. That brought a certain special peace of mind, considering that we have over $30,000 worth of medicine and equipment. Each dose of some of my meds is over $30 and my Vest was over $11,000. They will not be leaving our possession, that’s for sure.
To give normal folks and those with various milder forms of CF, here is what we’ve packed:
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Major Progress Regarding Fatboyโs Man Boobs
September 2, 2010
When I went to clinic in August, I complained about my very (read: VERY) sore nipples. Dr Rolfe has been more than amazing the last year with working with Beautiful and me to get on just the right regimen for my unique situation that I created for myself over the last decade of on/off treatments and over two dozen courses of home IVs. One of those treatments was testosterone injections after my symptoms indicated and blood tests verified that I had the testosterone levels of a geriatric patient, causing lethargy, crying watching reality TV, and an extreme loss of appetite and muscle tone.
I was prescribed 600mg per month about 18 months ago. Due to recent manufacturing shortages, I had my injection dosage changed from bi-weekly shots to weekly shots of a lower concentration to keep my monthly dose the same and attempt to keep my levels more… level.
Fatboy vs the TSA – Traveling with Medical Stuff
September 4, 2010
We were stressing over traveling up to Ohio this weekend with all of my medicine and medical supplies that included my $11,000 Vest and 4 days of Cayston and Pulmozyme, along with all of my other "less expensive" meds. Of course, we were also n more … [Read more]
Major Progress Regarding Fatboyโs Man Boobs
September 2, 2010
When I went to clinic in August, I complained about my very (read: VERY) sore nipples. Dr Rolfe has been more than amazing the last year with working with Beautiful and me to get on just the right regimen for my unique situation that I created for … [Read more]
