Changing the standard of thinking.

Fatboy Has Lost His Appetite

Boy, Am I HungryHe wants it back, really badly. Even Megace isn’t helping much because it mainly helps me not feel full while I’m eating, but the problem is that I haven’t even been hungry for quite a while – pretty much since my blockage. I really have no idea what’s up. Beautiful is concerned that I’m hovering just below 130lbs right now, but that I look a lot thinner. I think the look has to do with it not being fresh weight any more, but who knows? I can’t tell reverse changes like that, only gains now. I’ll see the gain when it comes, so let’s figure out how to eat again. I have 3 ideas at this point, and this is just speculation:

  • The blockage really has done a number on me and makes me feel satisfied on less because my stomach shrank from a day of not eating and the subsequent cramps I still have after eating indicates that some things are still not back to normal.
  • I got off my t-shot schedule by 2 days last weekend and it’s a known factor in appetite. I’m back on schedule this weekend, so we’ll see if my appetite returns as a possible indicator of its need to stay on schedule.
  • Our medical/insurance/financial trifecta has depressed my appetite. It’s hard to think about food when you’re thinking about insurance issues for other people on other plans and trying to make sure that everyone gets the attention they need and that everyone gets paid. I flip/flop between being down and working like a beast until late into the morning and doing myself no good that way.

Any ideas or suggestions about what works for you (or if you happen to have a pretty good idea about which of these it is) would be especially welcome. I have clinic in exactly 2 weeks and I have to be Fatboy, not Mediumboy.

‘Improving Access to Clinical Trials Act’ Passes U.S. Senate in Victory for CF Advocates

BETHESDA, Md., Aug. 6 /PRNewswire-USNewswire/ — The U.S. Senate last night passed the Improving Access to Clinical Trials Act” (I-ACT), a bipartisan piece of legislation championed by the Cystic Fibrosis Foundation, its advocates and 120 other health advocacy organizations.

The legislation enables patients with rare diseases to participate in clinical trials without losing eligibility for public healthcare benefits.

Read the full story…

Whirlwind of a Day

What 500 Awareness Bands Looks LikeIt’s been quite a day at Fatboy’s house today. Things got started at 6am with the morning routine of fixing Beautiful a sandwich for lunch, having my omelet, and even went the extra mile to start cleaning the kitchen. I even got to kill 2 cockroaches, one of which induced screaming by a certain someone.

Prophetically, the bug guy called after lunch to say he was going to be doing his client visits in the area tomorrow. I wonder if those buggers were part of a conspiracy to come out exactly this morning to make me continue with the bug guy. I’m pretty sure he said he just does outside spraying or trouble areas after the annual visit we’ve already had, so he should just spray around the living room and the downstairs bathroom.

[Read more…]

CF Awareness Bands on Sale Now

We have just opened the store tonight with our order of purple CF awareness bands that arrived today. Get yours in the store or by clicking the link in the menu for Awareness Bands. Only $1.00 plus shipping to the US, Canada, and UK for now.

Send me a contact form message if you live elsewhere and I will calculate shipping for you and create a new country option in the ordering system.

CF Fatboy Store

Fatboy Has Lost His Appetite

He wants it back, really badly. Even Megace isn't helping much because it mainly helps me not feel full while I'm eating, but the problem is that I haven't even been hungry for quite a while - pretty much since my blockage. I really have no idea … [Read more]

‘Improving Access to Clinical Trials Act’ Passes U.S. Senate in Victory for CF Advocates

BETHESDA, Md., Aug. 6 /PRNewswire-USNewswire/ -- The U.S. Senate last night passed the "Improving Access to Clinical Trials Act" (I-ACT), a bipartisan piece of legislation championed by the Cystic Fibrosis Foundation, its advocates and 120 other … [Read more]

Whirlwind of a Day

It's been quite a day at Fatboy's house today. Things got started at 6am with the morning routine of fixing Beautiful a sandwich for lunch, having my omelet, and even went the extra mile to start cleaning the kitchen. I even got to kill 2 … [Read more]

CF Awareness Bands on Sale Now

We have just opened the store tonight with our order of purple CF awareness bands that arrived today. Get yours in the store or by clicking the link in the menu for Awareness Bands. Only $1.00 plus shipping to the US, Canada, and UK for now. Send … [Read more]

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