Colorado Springs - ยฉ2002 Jesse Petersen
Feedback Request on Meconium Ileus Scars
July 31, 2010
I put out a special request tonight for a topic about Fatboy or CF and got this one in from Jessica – a.k.a. @chronicuriosity:
“Fatboy…the Early Years” or more on why your illieus issues @ birth still cause issues (I’m a illeus baby, too – hot dog scar!)
I’ve promised to stop talking about my bellyaching for now, so here is another angle that I didn’t cover in my posts on my scar or any of my blockage posts. I’m turning this into a personal/community request for information and feedback.
I’ve always noticed that my scar (shown again for your benefit) seems to be directly attached to the abdominal muscles beneath it. You can try to grab my scar and pull it outward, but there is nothing to grab onto because it’s so tightly pressed to my muscles, which were totally raped by the surgeon. I have a 3 1/2 pack, even though you could roll a car over me with my strong abdominal wall. This photo was taken before I got a nice layer of fat from my additional 15lbs of weight, but all you can still grab is fat.
It has been cosmetically bothering me because my added weight gain has created a crease running across my gut that is visible to all because my shirts are all tight now. I look like a fat slob with two beer guts instead of one. I know it’s petty, but it is also uncomfortable because I know my stomach and intestines could expand more if they weren’t being held back by the scar.
Do any of you have an attached meconium ileus scar or do you have “freedom” between your scar and underlying tissue? If you have “freedom,” do you agree with my issue or do you wish you had my problem because your stomach just keeps getting bigger and having the scar keep things in check would be nice? Let’s get the CFers chiming in here, since only 10% of us are born with meconium ileus.
Fatboy, Stop Your Bellyaching or Get Enteroclysis
July 30, 2010
I’d love to, but my belly still hurts. When I eat or drink, when I’m not occupied with other activities, or other activities put my abdomen to use, nearly a third of the pain of Wednesday returns. Aside from little updates on how I feel, I promise this will be the last you hear of this blockage for a while, ‘mkay? Before you keep on wondering as you read on, missing my good writing material while wondering, yes, those are my intestines a few days after my December blockage (December 29th, to be exact). I got it in just before our insurance would have made me pay a huge deducible (unbeknownst to us, but I wasn’t willing to risk it and pushed for a 2009 test date).
Let’s be positive for a second, since I am an eternal optimist, according to the resident expert on Fatboy: Beautiful. On a super awesome note, I kept track of my weight through the ordeal, and I must say, Fatboy responds well to being fat. Here’s what happened. Pre-blockage: 134/135. Post blockage: 125. Last night: 129. This morning: 131. It was clearly sweated weight loss due to the combination of using a heating pad whilst lying on a leather sofa all afternoon and night long. I forgot to weigh myself tonight, but I’m certain it’s at least 133, just 2 days after going hours consuming little to no calories.
Trouble continues
I can tell you exactly where the trouble continues: right at my bottleneck spot. The continual cramping and straining against the mass that had me blocked makes for a very tender area of gut. I don’t know if the mass needs to be big and is continually stretching and straining the smooth muscle with the peristalic action.
CF Awareness Bracelets
July 30, 2010
We have ordered 500 silicone awareness bracelets this morning. As soon as I finish creating the PayPal side of things and the graphics, we will begin pre-ordering.
Since we did not receive 50 questionnaires, I will be picking one at random to receive one free bracelet and one person to receive 3 free bracelets to fulfill my promises of a prize.
I will announce pre-order sales when the page is set up. We are very excited and can’t wait to see them when they arrive.
Feedback Request on Meconium Ileus Scars
July 31, 2010
I put out a special request tonight for a topic about Fatboy or CF and got this one in from Jessica - a.k.a. @chronicuriosity: "Fatboy...the Early Years" or more on why your illieus issues @ birth still cause issues (I'm a illeus baby, too - hot dog … [Read more]
Fatboy, Stop Your Bellyaching or Get Enteroclysis
July 30, 2010
I'd love to, but my belly still hurts. When I eat or drink, when I'm not occupied with other activities, or other activities put my abdomen to use, nearly a third of the pain of Wednesday returns. Aside from little updates on how I feel, I promise … [Read more]
CF Awareness Bracelets
July 30, 2010
We have ordered 500 silicone awareness bracelets this morning. As soon as I finish creating the PayPal side of things and the graphics, we will begin pre-ordering. Since we did not receive 50 questionnaires, I will be picking one at random to … [Read more]
