Changing the standard of thinking.

Surviving a 21-hour Blockage Without Pain Meds

I Would Rather Give Birth

At least she has an epidural!

A lot can happen in 24 hours. It’s been said by several people already: I jinxed myself blogging about my last blockage that I had in December (Part 1 and Part 2). Yesterday was a day and night of utter misery with yet another blockage. Yay, right?

Why the photo of the pregnant woman? I’ve had a family friend who experiences occasional IBS tell me that she’d rather give birth again than have another round of IBS and she is sure that the pain I go through with my blockages is worse than her IBS. Nothing against women; that came from a woman with 3 kids. That’s the kind of day I have when I have a blockage. So, I should have something like 20 kids by now…

It wasn’t my fault again

At about 7am, I noticed I still wasn’t quite feeling well from the late night before. I felt like I’d eaten greasy hamburgers, but I’d had a very healthy meal. Something just didn’t feel right. I checked my travel enzyme bottle and confirmed I’d taken my Zenpep. I had a normal breakfast and lunch and was sure to take enzymes with my cheese and crackers.

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Cystic Gal, Beth Peters, Is in ICU Now

Word from her uncle and sister says that it was a textbook surgery and that her new, pink lungs are a perfect fit for her. We are all waiting with bated breath until she makes her own first communication. Knowing her, it won’t be long. You know Beautiful will have instructions to leave my iPhone on my lap at all times if I ever need to get a lung transplant.

Go Beth, go!ย  Cystic Gal

Emotional Evening, and I’m not the One Getting New Lungs

There is something emotional to the core about Cystic Gal getting her new lungs tonight as I type. She is currently under the knife having her wretched, diseased lungs carefully removed from her chest cavity. Beautiful said she felt the same way when Piper got her lungs, but I wasn’t following Piper like I have been CG, because CG is all over Twitter and the blogs with comments and such.

Beth Peters (CG) is my first cystic fibrosis friend to receive her dream of new lungs. Everyone else has become a friend post facto, at the very earliest with me finding out they got “the call” and following them as their transplant day progressed.

Beautiful asked me what I was feeling about her transplant before she went to bed tonight. I couldn’t quite put my finger on it because it’s not like we’re great friends, but we have hundreds of tweets going back and forth and understand each other pretty well. We are both fighters. She’s going this alone in Boston, and I have to respect that a ton.

My eventual answer was I’m feeling emotional because, barring a cure that prevents CFers with my level of pulmonary damage from ever needing a transplant, this will happen to us someday. I’m banking, praying, and working towards health and a cure, but I’m witnessing what could be exactly what we experience some day in the future. It’s scary. It’s exciting. Did I mention that it’s scary and exciting?

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Cystic Gal Got The Call

Cystic Gal Got “The Call”

She’s been quiet for a while, but word got around that she got the call after lunch, or at least that is when the one person I heard it from posted it.
Her site notes:

As the primary recip. …
Will update. Gotta go to hospital!!
Big prayers and love and light my way, pls.

Surviving a 21-hour Blockage Without Pain Meds

A lot can happen in 24 hours. It's been said by several people already: I jinxed myself blogging about my last blockage that I had in December (Part 1 and Part 2). Yesterday was a day and night of utter misery with yet another blockage. Yay, … [Read more]

Cystic Gal, Beth Peters, Is in ICU Now

Word from her uncle and sister says that it was a textbook surgery and that her new, pink lungs are a perfect fit for her. We are all waiting with bated breath until she makes her own first communication. Knowing her, it won't be long. You know … [Read more]

Emotional Evening, and I’m not the One Getting New Lungs

There is something emotional to the core about Cystic Gal getting her new lungs tonight as I type. She is currently under the knife having her wretched, diseased lungs carefully removed from her chest cavity. Beautiful said she felt the same way when … [Read more]

Cystic Gal Got The Call

Cystic Gal Got "The Call" She's been quiet for a while, but word got around that she got the call after lunch, or at least that is when the one person I heard it from posted it. Her site notes: As the primary recip. ... Will update. Gotta go to … [Read more]

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