Cystic Fibrosis Fatboy

We left off with Part One with an inconclusive contrast CT scan, a super slow staff, and a previously unmentioned multitude of requests that they call my CF doctor, who is on staff in the building, to let him know I’m in the ER that has gone unattended to for over 12 hours. We now know to call the on-call doctor on the way to the ER or call the coordinator if it’s during the day. I’m not messing around with blockages any more – I may even opt for corrective surgery the next time, because I really can’t describe the pain and suffering that goes on during a 24-52 hour blockage.

The only good thing that comes from a blockage is the relief afterward. However, even that was taken from me this time.

Oh, now you’ll listen to me anyway?

After hours of hammering them with my requested treatment method using reason, history, rage, and anything else I had available in my condition, they finally sent me down to radiology to get my enema. Long story short, I waited in the hall long enough for my morphine to wear off so I could experience the full torment of radiological hell without pain relief, but the treatment worked and I was sitting happily on the gurney waiting to be wheeled back to Beautiful when I gave them the “all clear” sign that I was “all clear.”

It didn’t take long back in the ER for me to realize that I wasn’t completely clear, though. I was very, very tender, along with an abnormal mass where I have my bottleneck. I was thinking that it only cleared out some of my problem, but that I’d had so much to eat at Outback that it just got re-plugged with that partially-digested food. Things still weren’t right.
[Read more…]