Changing the standard of thinking.

Silent Sunday: Halcyon

Halcyon by iNeedChemicalX

For Your 31st Birthday, I Give You a Blockage

My ER: TGHI definitely had a birthday to remember last year for my 31st birthday. I got the spend the next while in the hospital, but all of the misery began on my birthday. Let’s rewind a bit and start from the beginning, just for those who haven’t read everything about my history up until now.

I was born with meconium ileus and had about 25% of my small intestines removed in my first few days of life to repair the damage. Subsequently, I have a bottleneck of scarring that has always presented itself as a problem with various foods throughout my life. At first, it was whole kernel corn. For whatever reason, probably just because I became a better chewer of my food or my body grew big enough to let corn get through, I only have a problem with melted cheese when I haven’t taken enough (if any) enzymes. To keep this a little shorter, here is what happens and what normally solves my intestinal blockages.

My birthday is December 18th – one week before Christmas and two weeks before New Years. It’s been our tradition since we started dating to go out to a nice dinner (or as nice as I could afford when her birthday rolled around) to have a memory of the day. I can remember quite a few of my birthday dinners with Beautiful, and maybe even all of them… so you can imagine my horror when I started to feel cramps in the mid-morning on my birthday.
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What Drives You?

DriveI’ve been having an heart-felt back and forth with a concerned mom via my contact form whose 16-year old son has become non-compliant recently. He’s described as wonderful and smart, but just doesn’t care to do many, if any, of his treatments any more and stopped a sport he had played previously. I got to wondering what drives him, because I’ve been there, done that, and bought the t-shirt.

I had to burn that t-shirt the day I knew I wanted to marry Beautiful, but it still didn’t fully change what I was doing to make sure that I gave us the most time together. I’ll place a lot of the blame on my eFlow not working properly to allow me to actually have the time in the day to do my treatments (and I probably wasn’t getting the meds as I should when I did them most nights). Since that’s a cop-out, I’ll admit that I should have been more aggressive in doing whatever it took to get to a solution to be able to do my nebs properly. I take full responsibility for that end of the deal. It was stupid and will never happen again. Now, let’s get back to the underlying issue at hand: drive.

“If you do not change direction, you may end up where you are heading.”

โ€” Lao Tzu

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Breathe Car Stickers

Jamie over at Radek Loves to Breathe just got a new tattoo for her car when she found out that her magnetic CF ribbon wouldn’t stick to her new car’s aluminum trunk. Her friend made these up for her and are for sale for $8.00 on her site.

New CF Car Tatoo

Silent Sunday: Halcyon

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For Your 31st Birthday, I Give You a Blockage

I definitely had a birthday to remember last year for my 31st birthday. I got the spend the next while in the hospital, but all of the misery began on my birthday. Let's rewind a bit and start from the beginning, just for those who haven't read … [Read more]

What Drives You?

I've been having an heart-felt back and forth with a concerned mom via my contact form whose 16-year old son has become non-compliant recently. He's described as wonderful and smart, but just doesn't care to do many, if any, of his treatments any … [Read more]

Breathe Car Stickers

Jamie over at Radek Loves to Breathe just got a new tattoo for her car when she found out that her magnetic CF ribbon wouldn't stick to her new car's aluminum trunk. Her friend made these up for her and are for sale for $8.00 on her site. New CF Car … [Read more]

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