Changing the standard of thinking.

A Medical Look at a Regular Day

BoredToday, I just got fed up with all of these nebulizer treatments, but I did them anyway. I’ve been thinking about portraying what a normal day in my life looks like since I “get to stay home and hope people send me money,” which is an old line Beautiful used to say when I was just starting the home business. It’s a bit more than that now, but I suppose it still rings somewhat true, only further into the future rather than hoping they send money that day.

I looked up at the DVR machine this morning and it was 10:12am. I had made Beautiful’s lunch and made my omelet to down my huge breakfast and sent her out the door packing around 7am. After taking care of client work that didn’t get done last night when I passed out on the couch from a long day’s work, I started my nebs.

Everything is pretty organized now, so it is just a matter of making a stop at the fridge, the counter, and opening a cabinet door and coming back to the couch. This month, I’m on everything, so my routine includes Albuterol, Pulmozyme, Cayston, Colistin, and 7% saline. It’s a heck of a run, but I am ever so thankful that I don’t have a compressor and can do them all in my Trio and Altera in about 15-20 minutes if I don’t get distracted when one finishes. It’s really easy to put the neb down and just keep working in my line of work. If it weren’t for that technology, I’d be staring at 2.5 hours of nebs twice a day and an hour at another time and I would surely not be as compliant as I am.

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Fatboy Is Not a Victim of Cystic Fibrosis

September 2003At the risk of sounding like an over-priced self-improvement guru, I’ve got to nail home to the CF community and the world that CF is no longer the disease it once was. I will not be held back from any of my dreams other than beating John Elway in a quarterback contest and being an ace fighter pilot. I’ll let those to pass by on account of my size, anyway.

I’ve done a lot of surfing today to find new CFer blogs to add to my new color-coded blogroll. I found a lot of happy-go-lucky attitudes. I found a lot of misery. I found a lot of despair.

What I found the most of all was hope.

Hope of a better life than our collective CFer parents were told when we were born. I want you to watch this. All of it. This is your life, too.

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Fatboy Discusses His Health Insurance

Demote: Socialism + Healthcare by ~JFox343

Demote: Socialism + Healthcare by ~JFox343

Some people have asked me in comments and via my contact form about my health insurance, so I thought I’d put my story here for everyone’s benefit. To this day, and I imagine forevermore, my article: Fatboy’s Take on the Healthcare Reform Bill will remain one of the most popular pieces on here. Things to keep in mind regarding this information:

  • I live in Florida
  • I’ve never been on disability anything
  • I’ve never had a lapse in health insurance coverage

I’ve been on COBRA insurance several times in my career while switching jobs and had an individual policy with the company after I decided to convert it once before. We’ve done it again, so now I have a $5M policy with the same insurance company I’ve had since 2000, but my lifetime limit has reset every time I go onto a company plan and back onto an individual policy. We’re at about $60k so far – no sweat – but going back to my first insurance policy, I never gave any of that any thought.
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A Video Break and One Thought

I was looking for some inspirational CF videos and was coming up pretty blank in comparison to the last one I posted. Looks like I’m going to have to create my own after I get an HD webcam for this baby. I did, however, find this 2008 CBS Nightly News story about a CF marathon runner. My thought after the jump…

YouTube Preview Image

[Read more…]

A Medical Look at a Regular Day

Today, I just got fed up with all of these nebulizer treatments, but I did them anyway. I've been thinking about portraying what a normal day in my life looks like since I "get to stay home and hope people send me money," which is an old line … [Read more]

Fatboy Is Not a Victim of Cystic Fibrosis

At the risk of sounding like an over-priced self-improvement guru, I've got to nail home to the CF community and the world that CF is no longer the disease it once was. I will not be held back from any of my dreams other than beating John Elway in a … [Read more]

Fatboy Discusses His Health Insurance

Some people have asked me in comments and via my contact form about my health insurance, so I thought I'd put my story here for everyone's benefit. To this day, and I imagine forevermore, my article: Fatboy’s Take on the Healthcare Reform Bill will … [Read more]

A Video Break and One Thought

I was looking for some inspirational CF videos and was coming up pretty blank in comparison to the last one I posted. Looks like I'm going to have to create my own after I get an HD webcam for this baby. I did, however, find this 2008 CBS Nightly … [Read more]

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