Cystic Fibrosis Fatboy — Page 74 — The daily quest to gain weight

The Arrival of Cayston and an Altera

June 22, 2010

I was sitting at the coffee table working away, preparing for my 10am Skype call with a client when the doorbell rang. I jumped up because I knew I’d need to sign for this package: a $2000+ Altera and the $900+ Cayston shipment. I was wrong about the signing part, but right about the package. It was huge with the nice styrofoam cooler and tons of polar packs inside. I like to keep the coolers (okay, A cooler), but that is not allowed because we have a 1-car garage. Gotta get me an outside freezer for the polar packs, too. Man, I could be such a hoarder!

Shall we open it?

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Fatboy’s Great Personal Biogtry: Smokers

June 22, 2010

You know exactly what I’m talking about with this one. You’re sitting in a room and chimney comes and sits next to you. You’re trying to rush into a public building but have to first navigate an illegal gauntlet of smokers lining the sidewalks and entryway.

It’s days like these that probably make it a good thing for my safety that I topped off at 5′ 4″ and have no intention of really exercising any of the razorback that wants to come out and play with those smokers’ ankles.

I seem to be completely incapable of separating someone’s infinite other qualities once I know they are a smoker, let alone a chain smoker who has a smoker’s cough as a result of years of abuse. Colleagues: get away and send me an e-mail, but your IQ has dropped 45 points in my book. Family: I know you not, for you are too stupid to have come from the same spawn as I.

Can there be anything more unfair in place?

[Read more…]

Welcome “Normal” Medical Issues

June 21, 2010

This entry is part [part not set] of 19 in the series What CFers Do

It almost seems like a waste of time for a CFer to have a primary care doctor through their HMO. He asks me more questions about how I’m doing than anything helpful, but I do get good general care from him.

I just rarely ever have any “general care” issues. Any time I step foot into my primary care office, I feel like I’m on foreign turf. The office staff doesn’t remember me, they ask me to sign in and if my insurance has changed since it’s been more than 2-4 weeks since my last visit. They are surprised that I am annoyed that they don’t know what NSAIDs are when I list my allergies and that I can spell cefepime for them.

[Read more…]

Hiccups: the New Dreaded Symptom

June 20, 2010

The last two weeks have been ridiculous with the hiccups. Previously, only two things would make me hiccup:

turkey dinner
chicken breast

Now, it’s everything and at all times of the day and evening, regardless of eating, wanting to eat, or having eaten my fill. It’s not only moderately embarrassing, but these hiccups are painful, full-force half-pukes rather than annoying little hic, hic, hics. The worst when when they come in waves of hic, hic, hics, but with their full force.

Miserable!

I think we can trace the symptoms back to the increase in taking Megace in accordance to my prescribed amount, so it’s unknown whether it’s the amount of medicine itself or the effects of eating so much. I’ve gained 12 lbs in the last 2 weeks, for crying out loud. I look like a distended blockage boy every evening clear until bedtime, only to wake up normal and start over again.

As soon as I hit 135, which is the weight the doctor put on my “report card” from clinic, I’m cutting back on this weight gain craziness and see if I can maintain my weight with 1 Tbsp of Megace per day and eat more like I used to, because the constant danger of losing what I just ate is really freaking me out.

The Arrival of Cayston and an Altera

June 22, 2010

I was sitting at the coffee table working away, preparing for my 10am Skype call with a client when the doorbell rang. I jumped up because I knew I'd need to sign for this package: a $2000+ Altera and the $900+ Cayston shipment. I was wrong about the … [Read more]

Fatboy’s Great Personal Biogtry: Smokers

June 22, 2010

You know exactly what I'm talking about with this one. You're sitting in a room and chimney comes and sits next to you. You're trying to rush into a public building but have to first navigate an illegal gauntlet of smokers lining the sidewalks and … [Read more]

Welcome “Normal” Medical Issues

June 21, 2010

It almost seems like a waste of time for a CFer to have a primary care doctor through their HMO. He asks me more questions about how I'm doing than anything helpful, but I do get good general care from him. I just rarely ever have any "general … [Read more]

Hiccups: the New Dreaded Symptom

June 20, 2010

The last two weeks have been ridiculous with the hiccups. Previously, only two things would make me hiccup: turkey dinner chicken breast Now, it's everything and at all times of the day and evening, regardless of eating, wanting to eat, or … [Read more]

Can there be anything more unfair in place?

Time Elapsed Since IVs