If you’re married with cystic fibrosis, you’ve probably heard from your spouse something about how much you mean to them. I sure hope you have, or you’ve got something to talk about now. I’m one of those who’s heard this several times, but just not been able to make that “be enough” to enact the change I needed to make. Call me stubborn again. I’m not sure what it was that did it, but it was over about 36-48 hours that I decided it was time for a complete overhaul of what I was doing. Shoot, I’m going to hit an FEV1 of 80%, right? Right!?
We still want to have kids, and you have to ask yourself if you want to be alive, be on the couch on oxygen, be like you are now, or if you want to be thriving. If there is anything you can do to thrive, would you do it? What if it’s as miserable as doing treatments every day, budgeting extra money for preventive care and high-calorie foods? We spend an extra $84 every month for my Boost Plus drinks. I remember when I couldn’t believe I was paying $40/mo for high speed Internet, which I used for a good 80 hours/week! That is what sacrifice looks like.
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