I got to sleep in today until about 9:30 after taking an Ambien around 10pm to shut my mind off and “sleep deep” like I so enjoy. I totally didn’t meet my caloric goals for the day, with a pitiful 2800 Calories (including the Boost Plus next to me now) and I’m still hungry. I can’t eat, though, because Beautiful crashed on the couch 20′ from the kitchen and she didn’t get much more than 2 hours of sleep last night. Welcome to the married life of one person having CF and the other who doesn’t. I’ve lost a decent amount of weight today, but that’s just normal if I don’t pig out. One day it will hover where I want it to without stressing over the numbers. For now, hopefully I can get her to bed and grab a bunch of food before things get quiet again to get my numbers up to where they need to be.
Right after breakfast, I did something I don’t remember the last time I did it: albuterol, Pulmozyme, Colistine, and 7% saline all followed up by a Vest treatment. I did all four aerosols when we got home (hold on, I’m gettting to it) but was unable to do the Vest for above-mentioned reason.
I worked on my Spanish homework that us due at midnight Sunday night while I did my aerosols and then we ate some lunch before heading out to the flea market. We walked around for a good 90 minutes to 2 hours in the (mostly) fresh air. Some people just don’t grasp the Florida statute that says if there is a roof of any kind over your head, it’s considered to be indoors… plus the area that is off-limits from egressing and ingressing. That pretty much rules out everywhere but the parking lot. Anyway, up and down each of those buildings was surely a couple of miles.
We got her engagement ring repaired for $25 by an Old World Greek master jeweler and paid him an extra $2 for polishing her wedding band.
It was definitely the most exercise I’ve had since our last amusement park venture, but without any coughing this time.
This is the information that sparked my near-obsession with gaining weight. I somehow knew it’s the first step in getting back to a more normal life — like I had in my late teens. Beautiful began reading the CF forums almost two years ago, and found everyone saying that their pulmonary function tests (PFTs) improved with weight gain. Here I was assuming that I had better lung function back in the day simply because I was younger, but remembering that I weighed 118 back then and never got close to that ever since had me wondering if a better life was around the corner just by gaining weight.
