
ยฉ2007-2010 ~turkeza
Here’s another classic: you’re in the ER and the doctor finally saunters in after you’ve been there for hours, and one of the first things he asks you is, “how long have you had CF?”
I want another doctor. Now!
I’ve watched my doses from the home health pharmacy come in with a Tobra dose for a 75kg person. Who told them I was 75kg? I was 43 or so at the time.
I’ve left the pharmacy with one box of Pulmozyme when my Rx is for twice a day (60 vials/month) and had to go back to get my full amount, not once, but twice.
Growing up in a small town in Ohio, I’m sure we put the pharmacist’s kids into every one of their cars and through college with our own supplies. In a town of 40,000, I was likely the only person there who had CF – we had to drive an hour to our CF center in Toledo.